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Introducing AboutMe: Empowering Patients Through Data

In the evolving landscape of healthcare, patient-centered care has become a priority. Understanding patients’ experiences, symptoms, and quality of life directly from the source is crucial for delivering care that will help individuals improve their social and work participation, while using resources optimally. AboutMeTM, aims to bridge the gap between patients and healthcare providers by efficiently capturing patient-reported outcomes (PROs).

What are Patient-Reported Outcomes (PROs)?

PROs are health data directly reported by the patient without interpretation by healthcare professionals. Scores on Patient Reported Outcome Measures (PROMs) can be used to capture:

  • Symptoms and Side Effects: Patients’ descriptions of symptoms or adverse effects from treatments.
  • Quality of Life: How a condition impacts daily living, mental health, and overall well-being.
  • Functional Status: The ability to perform everyday activities.
  • Treatment Satisfaction: Patients’ satisfaction with treatments and healthcare services.

Key Features of AboutMeTM

  1. User-Friendly Interface: AboutMeTM is designed with the patient in mind. Its intuitive interface ensures that even those with minimal technological proficiency can easily report their outcomes.
  2. Real-Time Data Collection: Patients can report their health status in real-time, providing healthcare providers with up-to-date information to make informed decisions.
  3. Customizable Surveys: Healthcare providers can tailor surveys to address specific conditions or treatments, ensuring relevant and precise data collection.
  4. Secure and Confidential: Patient data security is our top priority. AboutMeTM employs advanced encryption and security protocols to ensure that all information remains confidential and protected.
  5. Integration with Electronic Health Records (EHR): AboutMeTM seamlessly integrates with existing EHR systems, ensuring that patient-reported outcomes are easily accessible to healthcare providers.

Benefits of AboutMeTM

For Patients:

  • Empowerment: Patients have a direct channel to communicate their experiences and concerns.
  • Improved Care: Real-time reporting can lead to timely interventions and better management of symptoms and side effects.
  • Enhanced Satisfaction: Knowing their input directly influences their care can lead to higher satisfaction rates.

For Healthcare Providers:

  • Comprehensive Insights: Access to a wealth of patient-reported data can enhance understanding of patient needs and treatment efficacy.
  • Personalized Care: Providers can tailor treatments based on individual patient reports, leading to more personalized and effective care plans.
  • Improved Outcomes: Timely interventions based on real-time data can lead to improved patient outcomes and overall health.

Projects Leveraging AboutMeTM

AboutMeTM is already making waves in various healthcare projects:

  • Rehabilitation Care Optimization:
    • The low back pain clinic in constant Lethbridge uses AboutMeTM to monitor patient symptoms, guide patient-care team collaborative discussions during the clinical visit, and adjust therapies, significantly improving patient comfort and outcomes.
    • Bridging therapy from clinics or schools to homes can enhance parent engagement and therapy intensity for children with special needs, improving their outcomes. The BRAVER application enables direct communication between parents and therapists, offering insights into the child’s therapy. AboutMeTM was used to assess the feasibility of implementing BRAVER in specialized school rehabilitation programs.
    • Patients, caregivers, and healthcare professionals will use AboutMeTM to report their perceptions of the early mobilization programs in the Jewish General Hospital Cardiovascular units. These programs have the potential to improve the quality of care provided to patients while in hospital to facilitate successful transitions back home. They may also promote further clinician-researcher partnerships, contributing to enhanced uptake of best practices in this clinical context.
  • Chronic Disease Management:
    • Individuals with SCI in two rehabilitation centers in Ontario and Vancouver are completing patient-reported assessments at various points in their care journey through AboutMeTM, empowering patients to participate actively in their care and facilitating communication between patients and healthcare providers.
    • Clinics specializing in Chronic pain management in the pain management clinic in Sante-Anne Hospital for Veterans utilize the AboutMeTM platform to gather patient feedback, allowing for better disease management and personalized treatment plans. They also use the aggregated data on PROs to inform quality improvement of their program.
  • Mental Health Initiatives: In all our projects, AboutMeTM is used to PROM sores related to mood, stress, and overall mental well-being, guiding interventions to support individuals.

These projects highlight AboutMeTM versatility and impact across different medical fields, underscoring its potential to revolutionize patient care.

Testimonials from Early Adopters

“AboutMe has transformed how we monitor and respond to our patients’ needs. The real-time data allows us to adjust treatment plans, swiftly improving patient comfort and outcomes.” ~ (Healthcare Professional)

“Using AboutMe made me feel heard. I could easily report my side effects and symptoms, and my doctor responded quickly with helpful advice and adjustments to my treatment.” ~ (Patient Participant)

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Thank you for reading the July edition of BRILLIANT. Together, we can transform healthcare through better communication and patient-centered care.

Stay Healthy and Informed,

The BRILLANT Team

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